Hope for Harley Night of Fundraising

Harley is a 15 year old boy living with a rare condition that affects his spine, bones, hearing, and growth. Following spinal surgery in 2018, his health deteriorated severely, leaving him with catastrophic lung damage and rapidly declining breathing. He is now considered inoperable in the UK. His only chance of survival is highly specialised treatment abroad, costing over £2.5 million. Harley now relies on oxygen and breathing support, and his family are racing against time to raise the funds needed to give him a chance to live.